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Caregivers Access to Healthcare Information

When we start caring for a loved one, we instantly become the chief administrator of all their health information. We need to collect and organize records of past diagnoses, vitals, test results, lab results, medications, and much more. Records can build and become overwhelming quickly.

At some point, our loved one may not be able to help. Contacting current and past medical providers and clinics to get the full picture may seem like a daunting task, but with these tips, the process of organizing records may become a bit easier.

Accessing Your Records

First and foremost, everyone has the right to get free access to their health information. This right is due to the Health Insurance Portability and Accountability Act (HIPAA). Records must be provided in an electronic (or other portable format) at no charge. This includes radiology images, test reports, and any documentation that may be used for continuity of care. To learn more about HIPAA and these rights, visit the Health and Human Services (HHS) website.

As a caregiver, you will need unfettered access to your loved one’s healthcare information. Your right of access is based on your loved one authorizing you to act on their behalf. The best way to become authorized is by having your loved-one sign a Medical Power of Attorney (MPOA). This document can specify your role, the actions you are authorized to take, and the amount of time that the MPOA is valid. Every state has different rules on what needs to be in this document and how it needs to be executed. You can do a web search by state to find the right form. Most major clinics or hospitals will have a properly formatted MPOA for their jurisdiction and will usually help you execute it.

Exercising Your Loved One’s Wishes
 

Once you have an executed MPOA, make lots of copies and be sure to file them with each of your loved one’s healthcare providers, pharmacies, and their insurers. It will be helpful to keep a scanned copy on your cell phone, so you may present it on demand. You may also request access to the patient portal at your loved one’s provider and insurer. Alternatively, you and your loved-one has the right to use your own health record application to access these medical records. This right is provided by the 21st Century Cures Act and the Office of the National Coordinator (ONC) Final Rule which states that you have the right to use the application of your choice to retrieve and manage your health records.

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